The Cure Starts Now Foundation
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Victor is a silly, bright, funny, curious boy who always has 100 questions for everything and everyone. He loves cars, trucks, airplanes and he wants to be a pilot when he grows up. He loves people and loves to talk with just about anyone about just about anything!  He has always been healthy, happy, growing like a weed.

Victor started having night terrors and nightmares in May 2013. He was waking up many times a night and had a hard time falling asleep. I made an appointment for a sleep study, but could not get a spot before July 31st.

Then, in June, his speech became a bit slurred, and he seemed to be stumbling more. We thought sleep-deprivivation was to blame. But to be sure, I took him to the ER on Fathers' day in the hope that we would get our sleep study earlier since his symptoms were getting worse.  What happened then was the most shocking experience we have ever had.

The emergency doctor had a CT scan done and they found a mass at the bottom of his brain.  We were admitted right away at the hospital, and waited all day Sunday (Happy Father's day, Josh...) to get an MRI done.  Finally at midnight it happened and confirmed the worst.

Victor has a tumor inside the pons of his brain. It is called DIPG. Diffuse Intrinsic Pontine Glioma. It is located in the brain stem. By their very nature, these tumors invade diffusely throughout the brain stem, growing between normal nerve cells, making them inoperable.  DIPG has taken away Victor's ability to swallow, eat, walk, talk, or move in any way.  It has taken away his dreams, hopes, and smiles. Along with all of ours, as well. 

This illness destroys 300 families per year, just in the USA. Yet, treatment for it has been the same for over 30 years. Very little progress happened because funding is very limited.  We are hoping to raise money in Victor's name to help fund research so that other families in the future have hope for their child.

Every dollar given on this website goes straight to research.  Help us help them find a cure.

Thank you,
Julie and Josh Caplan